Monday, April 14, 2014

6 days post mickey button, g tube removal

Tomorrow we're supposed to write the Dr and decide if we think Connor needs surgery.  Right now, we really think it's closed on the inside.  I figure if it were to start leaking, we'd call the pediatrician and she's authorize a surgery.  I will ask if we can go ahead with the scope or just wait a month or two to be entirely positive everything is as it should be.

Ok....Pics....not so graphic now.

Just showing my neurosis here.  Trying to take a few angles so I can then zoom in and see anything.  Really, I think he's good.  I showed one of my clinical nurses and she recommended I exchange the antibiotic cream to a cream like cortisone with a little steroid to get rid of the rash.  .....that's it for now. 

Sunday, April 13, 2014

pictures from tonight

Math tomorrow. ....  The lack of pics was just me forgetting the camera.
He looks good but it's starting a bit of a rash...oddly he's really red in the cheeks and starting to have diarrhea.  It could be totally unrelated.  He doesn't have a fever but he isn't eating as much or drinking as much.  We'll just have to keep our eye on him.


Did not have the flash on so the pics are not as detailed.  Tonight was the first time I saw anything coming out and it was hardly anything but a something dry and tiny.  We're a little concerned to see a rash but we're on top of it and will call Connor's awesome pediatrician if it looks like it's getting worse.

Crazy tired...but wanted to update.  

Friday, April 11, 2014

42 hours after g tube/mickey button removal

*****GRAPHIC PHOTOS*******
Cute warning pic.

Is this sealed????  I've got absolutely no idea.  I'm wondering if it heals from the inside/out.  Today, the gauze dressings did look clean.  :-)

Thursday, April 10, 2014

30 hours post mickey button/g tube removal

                  GRAPHIC PHOTOS!!!!!!
This is just your cool pic before the tummy hole.  

I am so tempted to sort of pull and peek but know that defeats the purpose instead I take these bright pics so I can zoom in and see.  He was smiling the entire time but somehow looks pitiful here.  No worries, he's acted like nothing has changed.  I will be calling the GI clinic tomorrow to see if and when I stop banging him up.  I was told he could bathe Saturday but as of now I can't imagine dunking him in a bath knowing there might still be a hole at that time....oh well, quill deal with the dilemma when the time comes.   For now, I think he's looking good.  :-)

1 day post mickey button/g tube removal


*******GRAPHIC PHOTO*********

Some may want to see what Connor's stoma (hole from mickey button) looks like.  I wanted to see what others looked like and could not find good pictures of the healing process.  I've read these usually seal within hours to a day.  It's good to remember Connor has had his button in for just over a year and a half so his chances of needing surgery to close this is 50/50 to start with.

First look....there is a bit of a smell.

Still A hole there but nothing like it was.  I'm sorry I don't have what the hole looked like before this was removed for good.  It basically looked allot like this but no pink except in the actual hole.  Basically it looked like a hole punched in his skin that also had his stomach pulled up, sort of glued together, and punched as well.  ......not sure this looks like something ready to seal or not....assuming nothing.  I was told I could just change the dressing once a day but after looking at others pics ans seeing it this morning, I'll change it twice a day.  We were instructed no baths for 3 nights and to really glob on the antibacterial ointment.  After looking at awful pictures, I know stomach acid can really leak and destroy the skin.  My view is atleast twice a day, I'll wash his skin and get that ointment back on.  I'll try to take pics with each dressing change.

Playing before his appt.

Sawyer there for support.  :-)

Showing their southern side.  Tailgating.  :-)

Snacking before the appt 

Ok, will try to post already daily. :-)