As for health, Connor is amazing. He had his annual "team" visit where he sees about 6 of his doctors and various experts like feeding and cognitive specialists. Everyone agreed he was awesome and unless there's an issue we notice, he'll simply do any routine follow up visits and we'll meet the team again next summer. He's cognitively online with all other two year olds and he rarely has an issue with food. We do have to watch him for overly stuffing his mouth with food but beyond that, he's eating and swallowing as he should. So far, his jaw has been developing in a natural way despite his surgeries. The jaw destraction he had at 6 weeks old is normally performed about 3 times in a PRS child's growing up years but so far, his breathing is great and his jaw has grown in proportion with his anatomy. His palate dang near looks natural. The doctor even laughed that his little hangy thing in the back of the throat looks like it's been there forever. And thus far in his speech development, he sounds like a normal 2 year old learning language. Connor's only concern right now is he has a constant little scab or open area (that doesn't leak) on his stoma due to him poking at it. Obviously, we do what we can here and cover it if we notice he's getting ridiculous but often he forgets about it and then we do too........and next thing you know, he's got a little open area again. We'll mention this at his next pediatrician's visit but are not too concerned. The other thing he's messing with is a small sort of skin tag on one of his chin scars. Same thing, occasionally he messes with that and we see a small amount of blood. It doesn't look concerning, more like it's just something for him to pick at.
As for Sawyer, we're convinced he doesn't have Autism due to him being so social. He definitely has some unique qualities that we're working on but he's fun and really in the past month or so has been becoming helpful and so good at listening. This is huge. He can have some epic fits but those are becoming rare. We incorporated the time out and he now simply goes to the chair. Even if he has a fit, he stays in the chair until the microwave timer beeps for him to get up (in which time, he's usually calmed down). He's become so good at picking up after himself and doing what we ask. He's also finally started going to the bathroom. He's far from potty trained but he's not screaming like the toilet will swallow him. I'm thinking once he starts his preschool program, that he'll get the potty training thing done with. ......as for being social, he loves people. He's still got a long way to go with speech but he's better than he was. I know he comprehends us because he does what he's asked most of the time now. He's simply not understood when he talks. The gibberish is there but with it, there are also some words that you can catch if you pay attention. I notice he's worst when he's excited and talking fast. When he slows down, you can understand some of what he is trying to convey. ......the only thing really troublesome is with Sawyer being so tall, he often is at the park and older kids believe he's their age. They try to strike up a conversation and Sawyer inevitably talks about trains in his gibberish way and the other kid will look at him like he's crazy. I tell them he's just tall and 3. I'm hoping his communication improves so much more in the coming months when he starts working with professionals again. We read constantly and he's great with words but just doesn't get those words put together in sentences. .......Connor is picking up some of the gibberish habits but we notice he's also making small sentences and so in this moment, we're not too concerned with Connor's speech.
Anywho, pics........and a note about my benefit for Ireland.